Learning Disability Mortality Review Programme


People with a learning disability, autism or both often have poorer physical and mental health than other people.  We know that we need to understand why so that we can make a difference to people’s lives.  As part of this understanding, the Learning Disability Mortality Review Programme – known as LeDeR - is being delivered by the University of Bristol and commissioned by the Healthcare Quality Improvement Partnership (HQIP) on behalf of NHS England.  The overall aim of the programme is to drive improvement in the quality of health and social care services delivery and to help reduce premature mortality and health inequalities.     

The 3rd annual report of the programme has just been published, highlighting the mortality gap for people with learning disabilities- on average women with a learning disability die 26 years younger than the average population and for men the gap is 20 years

NHS England have also published a report on work to translate learning from LeDeR into service improvements. 

In Enfield, we are working on this project with our North London STP partners. Enfield has been put forward as an area of best practice for hospice care:

  • Enfield integrated learning disability service and North London Hospice are creating accessible factsheet on palliative care with the aim to create a clearer understanding of the broader role of the hospice and palliative care and make it more accessible to people with a learning disability